Friday, September 30, 2016

Hard day turned amazing!

Had a hard morning today. I was supposed to draw a fasting blood draw for parkers dr appointment today and I spilled the glucose water the blood went into. This lead to a huge temper tantrum as we had to drive to the dr office for now 2 blood draws. he couldn't eat or have insulin until after. On the way to the doctors with a screaming son in the back, the song, "He's my son" by Mark Shultz came on the radio and I knew it was for me.I started to cry thinking about how much I wish I could take this all away from him. I felt like a total failure as a mother at this point. Once at the doctor, I had to hold him on my lap while they drew his blood. He was not happy and was crying. Of course I started crying too. I hated that he had to go through this. After the appointment, he got a cool prize and breakfast, and all was right in
 the world again! I am glad kids are so quick to move on and be happy again. :) 
Later that day when we had his regular appointment, the day got way better!!! Our appointment was to decide which drug he would be on for the trial we are on. He could be on the faster acting insulin that he takes 20 minutes after he eats, regular novolog, or a blind study where we don't know what insulin we are on. We ended up getting the fast acting insulin!!!! I totally started crying.  No longer do we have to pre dose his insulin before he eats. This is hard because he doesn't always eat all his food, or wants more but can't. Now he can eat just like everyone else. If he is full, he can stop eating, if he wants something else, cool! no problem! Its been a total game changer for us!! His blood sugars have been amazing too!! I can not beleive the stress it has releived for me and him! 

this song really touches my heart...

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